Patient Education Panel: Enhancing Access to Care for Patients with Endometriosis

4:30pm-5:30pm
New Orleans Theater
Chair: Shanti I. Mohling
Faculty: Danielle E. Luciano, Iris K. Orbuch, Humberto Dionisi, Robert S. Furr, Sallie Sarrel, Ramiro Cabrera
Patient Advocacy Group Representatives: 
Shannon Cohn - EndoWhat?
Heidi Yule - Director of Development - Endometriosis UK
Arianna Magnani - Italian Association Associazione Progetto Endometriosis
Heather C. Guidone - Center for Endometriosis Care
Nancy Petersen - Nancy’s Nook
Lj Johnson - Lj’s Powerhouse
Wendy Bingham – Extrapelvic Not Rare

Description:
AAGL is committed to educating and empowering patients about their treatment options. Therefore, we are providing a free, one-hour, live streamed Zoom workshop on Endometriosis for patients during the 53rd AAGL Global Congress. 

Hosted by Dr. Shanti Mohling and a panel of world renown experts on the treatment of Endometriosis, this workshop seeks to educate patients on access to state of-the-art therapeutics and minimally invasive surgical options for Endometriosis treatment. 

Presenters will share recent medical and surgical updates, help patients identify questions to ask their provider, and encourage strategies for self-care and self-advocacy. Each patient's experience with Endometriosis is unique. This workshop will encourage patients to seek a tailored approach to their treatment and find a network of providers. By learning what to look for in a provider and what questions to ask, patients will be empowered to advocate for personalized treatment plans that are more effective.

In addition to our panelists, representatives from some of the most influential Endometriosis Patient Advocacy Groups will provide resources for patients, answer questions, and promote the session to their constituents. 

This webinar event will be recorded and available as a resource on the AAGL Patient Website at the end of the year.

Learning Objectives: After attending this session, the participant will be able to: 1) Make more informed choices in Navigating care for endometriosis; 2) Identify treatment options, sometimes including multiple medical disciplines; and 3) Identify how to set expectations and communicate with your provider about your pain.

Presentations:
Welcome, Introduction and Course Overview

Patient Empowerment: Asking the Right Questions and Making Informed Choices
Iris K. Orbuch, MD, Providence St. John's, Los Angeles, CA

Collaboration Between Medical Disciplines and Therapies: A Multi-Faceted Approach to Endometriosis Care
Sallie Sarrel, PT, The Endometriosis Summit, Hallandale, FL

Patient Empowerment: How to Speak With Your Endometriosis Surgeon and Manage Expectations for Surgery
Danielle E. Luciano, MD, University of Connecticut, Farmington, CT

It's Not Always IBS!
Ramiro Cabrera, MD, MSc, Instituto Doyenne, Naucalpan, Mexico

4:59pm - Excision Surgery for Endometriosis: Why It Has Become the Gold Standard for Surgical 
        Treatment - R.S. Furr
5:05pm - Round Table Question and Answer Session - Panel and Patient Advocates

Round Table Question and Answer Session with Panel and Patient Advocates
Wendy Bingham, DPT, Extrapelvic Not Rare (EPNR), Vancouver, WA, Katie Boyce, Endo Girls Blog, Dallas, TX, Shannon Cohn, JD, EndoWhat?, New York, NY, Heather C. Guidone, BCPA, Center for Endometriosis Care, Atlanta, GA, Lj Johnson PsyD, Lj's Powerhouse, Scottsdale, AZ, Nancy Peterson, Nancy's Nook, New York, Rosemarie Phillip, MSODL, PCC, A Life Well Loved, Houston, TX, and Heidi Yule, Endometriosis UK, London, United Kingdom

Discussion - Questions & Answers - All Faculty
5:29pm - Closing - S. Mohling
5:30pm - Adjourn